BackgroundUnderstanding representations of disease in various art genres provides insights into how patients and health care providers view the diseases. It can also be used to enhance patient care and stimulate patient self-management.MethodsThis paper reviews how cardiovascular diseases are represented in novels, films, and paintings: myocardial infarction, aneurysm, hypertension, stroke, heart transplantation, Marfan’s disease, congestive heart failure. Various search systems and definitions were used to help identify sources of representations of different cardiovascular diseases. The representations of the different diseases were (...) considered separately. The Common Sense Model was used a theoretical model to outline illness perceptions and self-management in the various identified novels, films, and paintings.ResultsMyocardial infarction followed by stroke were the most frequently detailed diseases in all three art genres. This reflects their higher prevalence. Representations ranged from biomedical details through to social and psychological consequences of the diseases.ConclusionsArtistic representations of cardiovascular diseases reflect cognitions, emotions, and images of prevalent disease. These representations shape views and behaviour of ill and healthy persons regarding heart diseases. As these representations are amenable to change, they deserve further research, which may be instrumental in improving the quality of life of persons struck by cardiovascular diseases. Changing illness perceptions appears to be a method to improve self-management and thereby quality of life in patients with various cardiovascular diseases. (shrink)

Family carers of individual’s living with Huntington’s Disease (HD) manage a distinct and unique series of difficulties arising from the complex nature of HD. This paper presents the validation of the definitive measure of quality of life for this group. The Huntington’s Disease Quality of Life Battery for carers (HDQoL-C) was expanded and then administered to an international sample of 1716 partners and family carers from 13 countries. In terms of the psychometric properties of the tool, exploratory analysis of half (...) of the sample, demonstrated good internal consistency and reliability. Some items on the full version did not meet psychometric thresholds and a short version (HDQoL-Cs) was developed based on more stringent criteria. Confirmatory Factor Analysis of the model structure showed a good fit for all Factors and, indicated that the HDQoL-C and HDQoL-Cs are psychometrically robust measures of quality of life. We found that carers who lived with and looked after their spouse/partner had reduced sense of coping, hope for the future and overall quality of life. Carers with children who were at risk, carried the gene or were symptomatic also had poorer quality of life outcomes. Findings indicated the HDQoL-C and HDQoL-Cs are valid in multiple languages and across varied cultures as measures of self-reported quality of life in family carers of individual’s living with HD. These psychometrically validated tools can aid and guide the implementation of therapeutic interventions to improve life quality in this population. (shrink)

Misinformation perceptions related to global crises such as COVID-19 can have negative ramifications for democracy. Beliefs related to the prevalence of falsehoods may increase news avoidance or even vaccine hesitancy – a problematic context for successful interventions and policymaking. To explore how misinformation beliefs developed over a six-month pandemic period and how they corresponded to (digital) media preferences and selective exposure to the news, we rely on a five-wave panel survey conducted in the Netherlands (N =1,742). Our main findings show (...) that misinformation perceptions got more pronounced as the pandemic evolved. Social media use related to more pronounced misinformation beliefs within waves, whereas mainstream news use corresponded to less pronounced misinformation beliefs. An important implication for journalists and policymakers is to lower the over-time accumulation of misinformation perceptions, for example, by increasing transparency and acknowledging “honest mistakes.”. (shrink)

This contribution questions the positive/negative eugenics dichotomy that typifies the historiography on the eugenic movement in the Netherlands and the claim that this movement was mostly marginal because only positive eugenics was pursued. From 1938 to 1968 in the Netherlands, after a decade of debates, 400 sex offenders who had been committed to asylums for the criminally insane were ‘voluntarily’ and ‘therapeutically’ castrated. For political reasons debates on castration, meant to create consensus, eliminated any reference to or connotation with eugenics, (...) yet these policies were unthinkable without them. This article shows that thinking about social and sexual problems and their solutions in the 1930s were permeated by eugenic folklore which in turn was informed by sexual folklore. Both eugenic and sexual lore, as common sense, or as ways of knowing, were about individual and collective loss of self control which was referred to with a catch-all phrase: ‘hypersexuality’. Although sexual classifications used in diagnosing sex offenders suggested the existence of discrete sexual categories, homosexuality for instance was not seen as a sexual alternative or as an identity but as the extent to which an offender suffered from a form of hypersexuality that threatened the fabric of society. (shrink)

Populist attributions of blame have important effects on citizens’ attitudes, cognitions, emotions, and behaviors. Extending previous studies that have mostly looked at populist messages blaming political elites, we use an online survey experiment (N = 805) to investigate the effects of blaming different elitist actors in populist and non-populist ways: (1) political elites, (2) corporate elites, (3) scientific elites, and (4) a combination of these elites. We compare mere causal responsibility attribution to populist blame attributions that highlight a central opposition (...) between “pure ordinary people” and “corrupt elites” to tease out the specific effect of populist rhetoric. Results suggest that populist messages blaming all elites have stronger effects than isolated cues. Furthermore, populist blame attribution leads to more negative perceptions of the elites than non-populist blame attribution. The finding that populist frames can – under some conditions – activate negative perceptions toward different elites is alarming in times of declining trust in societal institutions, and calls for a more encompassing understanding of populists’ scapegoats. (shrink)

I claim that explanations of human behaviour by Edward O. Wilsonand Charles Lumsden are constituted by a religiously functioningmetaphysics: emergent materialism. The constitutive effects areidentified using six criteria, beginning with a metaphorical re-description of dissimilarities between levels of organization interms of the lower level, and consist of conceptual andexplanatory reductions (CER). Wilson and Lumsden practice CER,even though CER is not required by emergent materialism. Theypreconceive this practice by a re-description which conflates thelevels of organization and explain failure of CER in (...) terms oftechnical, not ontological or epistemological reasons. Iinterpret these three practices as a reaction of Wilson againsthis early Christian religious beliefs. Statements by Wilsonindicate this reaction ultimately constitutes his explanations ofsocial, moral and religious behaviour.Tested knowledge about matter at the lower level functions as ametaphysical belief when applied to the higher level becausethere it is untested. I offer twelve criteria for the diagnosisof religious functions of this metaphysical materialism, five ofwhich are satisfied. I show that the constitutive effects of thismaterialism in sociobiology are due to its religious functions,are beneficial for science and do not destroy its public nature. (shrink)

: The transplantation of adult human neural stem cells into prenatal non-humans offers an avenue for studying human neural cell development without direct use of human embryos. However, such experiments raise significant ethical concerns about mixing human and nonhuman materials in ways that could result in the development of human-nonhuman chimeras. This paper examines four arguments against such research, the moral taboo, species integrity, "unnaturalness," and human dignity arguments, and finds the last plausible. It argues that the transfer of human (...) brain or retinal stem cells to nonhuman embryos would not result in the development of human-nonhuman chimeras that denigrate human dignity, provided such stem cells are dissociated. The article provides guidelines that set ethical boundaries for conducting such research that are consonant with the requirements of human dignity. (shrink)

This study applies agenda setting theory to understand how firms’ financial performance is affected by both the news media and the public agenda. Using content and time-series analysis for the data of five Dutch firms, we demonstrate that media attention and public attention for a firm affect stock market ratings. As hypothesized, the effect of media attention was found to be negative whereas the effect of public attention was positive.

Several studies have focused on the effects of corporate social responsibility fit on external stakeholders’ evaluations of CSR activities, attitudes towards companies or brands, and behaviors. The results so far have been contradictory. A possible reason may be that the concept of CSR fit is more complicated than previously assumed. Researchers suggest that there may be different types of CSR fit, but so far no empirical research has focused on a typology of CSR fit. This study fills this gap, describing (...) a qualitative content analysis of the congruence between six organizations and their various CSR activities. Ten annual reports and CSR reports were analyzed, and 102 specific CSR activities were identified. The results show that two levels of fit must be distinguished: based on the means for and the intended ends of the CSR activity. Furthermore, six different types of fit were found, focusing on products and services, production processes, environmental impact, employees, suppliers, and geographical location. Considering the above variety of fit possibilities, the findings emphasize the role of CSR communication as a means of creating fit perceptions. (shrink)

Event sequences or scripts are the conceptual representations of activities in memory. Traditional views hold that events are represented in amodal networks and are retrieved by associative strategies. The embodied cognition approach holds that knowledge is grounded in perception and retrieved by mental simulation. We used a script generation task where event sequences of activities had to be produced. Activities varied in their degree of familiarity. In a regressional design we investigated whether amodal or perceptual variables best predicted knowledge retrieval (...) to gain insight into the underlying representation. Retrieval depended on the familiarity of the activity. While novel activities mainly relied on perception‐based simulation and to a lesser extent on associative strategies, moderately familiar activities showed the opposite pattern, and events of familiar activities were retrieved by association alone. We conclude that amodal structures exist in all representations that become stronger with increasing frequency and finally prevail over perceptual structures. (shrink)

Interactive technology assessment (iTA) provides an answer to the ethical problem of normative bias in evaluation research. This normative bias develops when relevant perspectives on the evaluand (the thing being evaluated) are neglected. In iTA this bias is overcome by incorporating different perspectives into the assessment. As a consequence, justification of decisions based on the assessment is provided by stakeholders having achieved agreement. In this article, agreement is identified with wide reflective equilibrium to show that it indeed has the potential (...) of justifying decisions. We work out several conditions for this agreement to be achievable and just. (shrink)

Health technology assessment (HTA) is often biased in the sense that it neglects relevant perspectives on the technology in question. To incorporate different perspectives in HTA, we should pursue agreement about what are relevant, plausible, and feasible research questions; interactive technology assessment (iTA) might be suitable for this goal. In this way a kind of procedural ethics is established. Currently, ethics too often is focussed on the application of general principles, which leaves a lot of confusion as to what really (...) is the matter in specific cases; in an iTA clashes of values should not be approached by use of such ethics. Instead, casuistry, as a tool used within the framework of iTA, should help to articulate and clarify what is the matter, as to make room for explication and consensus building. (shrink)

Lower levels of news use are generally understood to be associated with less political engagement among citizens. But while some people simply have a low preference for news, others avoid the news intentionally. So far little is known about the relationship between active news avoidance and civic engagement in society, a void this study has set out to fill. Based on a four-wave general population panel survey in the Netherlands, conducted between April and July 2020 (N = 1,084) during a (...) crisis situation, this research-in-brief investigates the development of news avoidance and pro-social civic engagement over time. Results suggest that higher news topic avoidance results in higher levels of civic engagement. The study discusses different explanations for why less news can mean more engagement. (shrink)

Name der Zeitschrift: Cognitive Linguistics Jahrgang: 25 Heft: 4 Seiten: 559-581.

In this article the perspective shifts to the “upstream” end of the agricultural knowledge and information system (AKIS). Because knowledge policy and strategic decision-making are not the prerogative of the public sector, organizations such as cooperative unions and multinational companies are included. After considering the influence of the changing environment on the nature of the AKIS, the role of knowledge management and policy in the emerging knowledge and information market is examined. Special attention is given to public and private R&D. (...) The article then looks where information technology (IT) fits in and what considerations determine strategic investment in IT projects and sustained services. Some of the European experiences with this strategic investment are evaluated. (shrink)

In this paper a formal framework is proposed in which variousinformative actions are combined, corresponding to the different ways in whichrational agents can acquire information. In order to solve the variousconflicts that could possibly occur when acquiring information fromdifferent sources, we propose a classification of the informationthat an agent possesses according to credibility. Based on this classification, we formalize what itmeans for agents to have seen or heard something, or to believesomething by default. We present a formalization of observations,communication actions, (...) and the attempted jumps to conclusions thatconstitutes default reasoning. To implement these informative actionswe use a general belief revision action which satisfies theAGM postulates; dependent on the credibility of the incominginformation this revision action acts on one or more parts ofthe classified belief sets of the agents. The abilities of agents formalizeboth the limited capacities of agents to acquire information, and the preference of one kind of information acquisition to another. A very important feature of our approach is that it shows how to integratevarious aspects of agency, in particular the (informational) attitudesof dealing with information from observation, communication and defaultreasoning into one coherent framework, both model-theoretically andsyntactically. (shrink)